Oregon Deafblind Project - Family Guide ODB Project Home

Welcome to the Oregon Deaf-Blind Project's Family Guide.

Your child has been diagnosed as Deaf-Blind. Now what? Our goal is to help you make sense of this journey by offering hope, helping you understand your child's needs, assisting you with next steps, and offering resources along the way. Please help us develop these pages by sharing what you know or have learned along the way.

In Case of Emergency

Resources to help you plan for an emergency situation.
Coming to Terms Getting the Support You Need Teaching Your Child
smiling girl

You are not alone!
There are other parents, medical professionals and educators to help you on this journey.

intervener working with child

There are many services available to help you on this journey, but sometimes they are difficult to find.

mother and boy rolling on large ball

Teaching a child that is deafblind is a unique experience and it starts with you at home.

Coming to terms with deafblindness

Find the services you need Communicating & playing with your child
Interveners Resources and Links Typical Development
intervener working with young boy

Interveners are specially trained to work one-on-one with your child and serve as a member of his educational team.

young boy playing with colored balls

Links to a variety of organizations and agencies involved with care and education of children who are deafblind.

boy pounding on large ball

Understanding typical development is essential to understanding how to meet the needs of your child.

Understanding the role of the intervener

Resources from a variety of topic areas Information on development

Working Together for Families: State Deaf-Blind Project & Parent Center Collaborations

Resources, strategies, State stories and more from the National Center on Deaf-Blindness.

The USDA Forest Service website features Accessible Adventures in the Pacific Northwest Video Series. Scroll down on the page to view accessible camping and adventures at many different scenic areas in Oregon.

Check out our Family Fun pages below for Oregon activities. Or download a PDF version for Oregon and California which include descriptions of activity locations, costs, wheelchair accessibility, Pros and Cons.


To register a child who is deafblind, please download the Oregon DeafBlind Project Child Registration Form, fill it out and return.

For more information, contact Carlie Rhoads, (rhoadsc@wou.edu) 503-838-8328

Western Oregon University | The Research Institute | The Oregon Deafblind Project

Ideas that work, IDEA logo

The Oregon Deafblind Project is funded through grant award # H326T130008, OSEP CFDA 84.326T, U.S. Department of Education, Office of Special Education (OSEP), OSEP Project Officer: Susan Weigert.

The opinions and policies expressed by this publication do not necessarily reflect those of The Research Institute at Western Oregon University or the US Department of Education.

345 N. Monmouth Ave. : Monmouth, OR 97361
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